Saturday, 28 December 2013

The Loneliest Road

I actually had to laugh when I saw this card because it captures how perfectly I have been feeling over the past year and a half.

After my PMP, I was thrown into 9 months of medical limbo. During that time, a number of my friends gave birth to babies, and it seemed like an even bigger number were getting pregnant.

There is nothing that makes you feel like more of a failure than watching so many people succeed where you could not. It's a wretched situation and one that I would not wish on my worst enemy.

To add insult to injury, a woman at work had her due date the day after what would have been mine, and so I got to spend the next 7 months watching her get bigger and bigger and trying not to measure her milestones against those that I would never have.

Having a miscarriage is probably one of the loneliest roads one can travel which seems strange to me because for something so common, it is so rarely discussed. It is such a taboo subject that no one ever speaks about because it makes everyone feel uncomfortable. Nothing kills a conversation faster than talking about your dead baby. People are scared to bring up your loss because they are afraid that it will remind you about what happened. What they don’t realise is that not a day that goes by when I don’t think about what happened.

A miscarriage is a life altering experience and the truth is you’re never the same after having one. A piece of you dies along with your baby. Society recognizes the grief of losing a parent, a grandparent, a brother, sister or friend, but it doesn’t look upon losing an unborn child in the same way. It’s a loss that most people aren’t able to understand and so many women are left to grieve silently.

Recovering from a miscarriage in the physical sense is a lot easier than recovering emotionally. Those scars run deep and are reopened regularly. My miscarriages destroyed my confidence in my own body which I used to think was pretty dependable until it failed me horribly over and over and over again. There is no joy in the thought of trying once more to get pregnant - only fear. Fear of losing another baby, fear of the physical and emotional pain, and the fear that the next time might kill me. And yet I will try again. I have to. There really is no other choice if I want to be a mother.

Hello, Rock, meet Hard Place.

Wednesday, 25 December 2013

And in time, this too shall pass...

I picked the name of this blog to remind myself that
everything ends at some point.  Both the good and the bad. I have never been one for tattoos but lately I have been considering getting this phrase inked somewhere on my body to take it with me always. Just another way that a miscarriage can change a person.

Christmas has come and gone. These days, I sort of dread holidays and celebrations. They always seem tainted by sadness and bitterness. My birthday this year was awful - just 10 days after my third miscarriage and I couldn't wait until it was over.

I tried very hard not to think about how this should have been baby's first Christmas. How I would have had a special stocking and ornament hanging on the tree to commemorate the occasion, and how wonderful it would have been to have been able to share this holiday with a child, even one that didn't yet know what was going on. Some days are harder than others.

Monday, 23 December 2013

Molar Pregnancy

I had my D&C nearly a month after I had found out that I had first lost the baby. At the hospital I was given a mountain of medical paperwork to fill out and led to a waiting room which, cruelly, was right next door to the labour and delivery ward. Sitting in the lobby with a bunch of women who were hours away from holding their healthy babies in their arms while I was waiting to say goodbye to mine must count as cruel and unusual punishment.

The nurses were lovely and held my hand while I lay on the operating table and cried. I cried because I was scared, I cried for our baby that we never got to meet, and for the life that we had planned out as parents but never got to experience.

And maybe that's half of my problem. I plan too much. I love structure and knowing how things are going to go because there is safety and security in that. And perhaps this is why I have such a hard time dealing with all of this; because there is no plan on this journey to motherhood. Nothing is a guarantee and I am powerless in all of this. I have learned the hard way that I can't plan my life. If I could, I would have had my first baby at 28, followed by a second one a couple of years later. Instead, I had three losses under my belt by the time I was 30 and I'm still trying to become a mother.

A few days after my D&C, I got a call from the doctor asking me to come in to see him because he thought that I may have had a partial molar pregnancy (PMP). If you're wondering what the heck that is, you're not alone. I had never heard of a molar pregnancy until I had one. The doctor explained that there had been a tumor that had been growing around the fetus which causes severe deformities and eventually kills it. One of the signs of a molar pregnancy is extremely high hCG levels and that would explain why the first pregnancy test I took showed up so clearly despite it being so early.

The doctor said that I would need to be closely monitored to make sure that the tumor didn't grow back. If it did, I need to be treated with chemo. Few words have the power to strike pure fear in people's hearts; tumor, cancer, and chemo are definitely up there as some of the most terrifying.

There are two types of molar pregnancies: a complete molar pregnancy and a partial molar pregnancy. You can learn more about the two types here. Regardless of the type of molar pregnancy, the treatment is the same. I was told to get a weekly blood test to monitor my hCG levels until they returned to zero. After they had remained at zero for 3 consecutive weeks, I would have to have 6 more months of monthly blood tests in order to make sure that the levels were not rising. Only once the doctor was sure there was no chance that the tumor would grow back, would I be allowed to  try and conceive again.

From the time I was diagnosed with my PMP to the point that I was given the all-clear took nine of the longest months of my life. Ironic, isn't it? I could have had a baby in the time that it took to get better. And while I healed physically, the fact that I wasn't able to jump back into the proverbial saddle (and sack!) made it almost impossible to heal emotionally. I was stuck in medical limbo - not sick, yet not well enough to try for another baby.

Tuesday, 17 December 2013

Of Missed Miscarriages and Cytotec

A week after having being told that I lost the baby, there was still no sign that my miscarriage was going to happen. Everything carried on heartbreakingly as normal. My boobs were still sore, I still had that bloated feeling, and the line on any pregnancy test that I took showed up painfully clear. That's the cruel thing about Mother Nature; she has a sick sense of humour.

The nurse told me that I needed to either take the cytotec or have a D&C because the risk of getting an infection was getting higher by the day. I chose what seemed like the lesser of the two evils and made an appointment to get the cytotec. I was warned that if the first dose did not work, I would have to have a second dose a couple of days later.

The night before the procedure, I read up on what other women had to say about the drug. The reactions were mixed - some said that it was just like having a heavy period, while others said that it was the worse pain that they had ever experienced in their life, complete with vomiting and passing out.

Knowing that I would one day want to be able to properly share my experience of this drug, I documented it as I went through the process.

4:15 pm
Was give 4 cytocec pills. It was a quick procedure - a little uncomfortable because of the speculum, but far more emotionally painful. I cried through the whole process. She gave a prescription for vicodin which I hope that I won't need but I would rather have it just in case.

5:15 pm
I am beginning to have a weird, churning sensation in my stomach and ever-so-slight amounts of pain. I also made myself eat a bowl of cereal so that I will have something in my stomach if I do need to take the vicodin. I am tossing around the idea of taking 3 Advil instead but it might not be enough. Also, I am not sure at what point do I take the painkillers? When the pain gets really bad? Or beforehand to ward off the pain before it really begins to hurt? These are the things that I wish I had thought to ask the nurse.

7:05 pm
I'm a little worried that things aren't progressing properly. I would have thought that I would be in the throws of cramps right now, but I just have some light pain that are similar to period pains. The nurse said that it can take up to 48 hours to work but I really don't want to have to go in again on Monday for a second dose.

7:10 pm
Just started bleeding. Not exactly the huge gush of blood that I had read about (just a small amount), but at least there is something. In some sick way, I want there to be a lot of blood and pain so that at least I know that it is working. Just like I wished that I had had morning sickness so that I would know that the pregnancy was okay. I am worried that this miscarriage may not finish 100%.

7:30 pm
The cramping has increased a little. It's still not unbearable, but definitely worse than any period pains that I have had. I have a hot water bottle which is helping a bit but I am wondering when I should take my pain killers. If this is as bad as it gets, I don't think I will need them.

8:35 pm
I passed my first blood clot. It was pretty big but it didn't hurt and my cramps don't seem to be any worse. So I am feeling relatively lucky at the moment that I haven't needed to take anything. I think I will take a few Advil before going to bed so that I am able to sleep without too much discomfort. 

9:45 pm
Heading to bed now. The pain is about the same but I haven't passed any more large clots - just small ones.

A blood test a couple of days later revealed that my hCG was not dropping as quickly as the nurse would have liked, and she told me that there was probably still a lot of pregnancy tissue inside my uterus. She suggested that they do another round of cytotec in the hopes that this would clear the rest of it out. And so a week later, I was back at the hospital getting another dose and going through the same process once again.

And like some horrendous Groundhog Day scenario, I still did not bleed as much as I should have. This left me with one other option - the one that I had been trying to desperately avoid. A D&C was the only way that I would finally be free from this pregnancy. From starting as something that I had so desperately wanted, this zombie pregnancy (dead, but not dead) was draining me physically and emotionally. I just wanted it all to be over and I couldn't help but see the sick irony of it all. For something that wasn't mean to be, it really wasn't easy to get rid of.